Patient advocates criticize federal backdown on organ donation registry rules

Patient advocates have sharply criticized the federal government's plans to not expand registration options for the organ donation registry, contrary to the Bundestag's resolution. The Stiftung Patientenschutz views this as a loss of credibility for the state. The federal government intends to comply with the states' demand to eliminate registration at ID offices.

In 2020, the Bundestag decided to establish a central organ donation registry, where citizens could also register at ID offices in the future. However, this legal requirement was not implemented by the federal states, as there are hardly any data protection-secure terminals in municipalities across Germany that are accessible to everyone.

Eugen Brysch, chairman of the Stiftung Patientenschutz, criticized the federal government's intention to now eliminate this registration option. "A state that wants to promote organ donation willingness loses credibility this way," he told the RedaktionsNetzwerk Deutschland (RND). Brysch emphasized that only few people have registered so far because the implementation is lacking. "Instead of demanding compliance from the states, the communal duty to provide barrier-free offers is now to be removed," he added.

The Bundestag rejected a proposal for an opt-out system in 2020 but approved the central registry. Later, the health ministers of the states demanded the removal of the ID office option, which the federal government now intends to follow. This change is part of the revision of the Transplantationsgesetz, which for the first time allows cross-donations. An expert hearing on this legislative proposal is scheduled in the Bundestag on Wednesday.

Since the registry's introduction in March 2024, half a million people have registered in the organ donation database.

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Illustration of a doctor disappointed by low 3.6% usage stats for electronic patient records in a clinic waiting room.
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Usage of electronic patient record remains low

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Despite new obligations for doctor's offices and clinics, only 3.6 percent of statutory insured use the electronic patient record actively. A survey by the RedaktionsNetzwerks Deutschland among major health insurers shows a slight increase since July 2025. Hopes for stronger usage through automatic filling of the records have not been fulfilled.

Organ donation is gaining momentum in Kerala, highlighted by inspiring stories of donors and recipients. In 2025, deceased donor numbers more than doubled, offering hope to thousands on waiting lists.

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Andreas Gassen, chairman of the Kassenärztliche Bundesvereinigung, calls for the complete elimination of voluntary additional services provided by statutory health insurance funds to achieve savings. He estimates the potential savings at nearly one billion euros per year. This comes amid a looming financing gap of twelve billion euros in the statutory health insurance system.

German Health Minister Nina Warken is calling for swift implementation of a new law allowing annual prescriptions for chronically ill patients. The measure aims to cut unnecessary doctor visits without raising costs for insurers or contributors. Yet, no concrete agreement on the details has been reached so far.

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As of December 31, 2025, China has recorded over 63,000 organ donation cases, involving more than 197,000 organs that have saved over 190,000 recipients. The number of registered volunteers has surpassed 7.3 million. Deputy Director Zhang Zongwei of the China Organ Donation Administrative Center stated that this reflects progress in social civilization.

Top associations of independent welfare organizations warn of cuts to social services due to financial strains. More than 80 percent of those surveyed expect reductions in aid for youth, the elderly, and the sick. Diakonie President Rüdiger Schuch sharply criticizes the federal government and calls for greater financial support.

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A Democrat-sponsored bill to allow terminally ill adults in Illinois to obtain life-ending medication has cleared the General Assembly and awaits Gov. J.B. Pritzker’s review following a 30–27 Senate vote in the early hours of Oct. 31, after House passage in May.

 

 

 

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