EPIC report warns of health privacy crisis in US

A new report from the Electronic Privacy Information Center (EPIC) highlights a growing health privacy crisis in the United States, driven by surveillance and immigration enforcement. Factors such as data brokers, ad-tech tracking, and actions by Immigration and Customs Enforcement (ICE) are eroding patient trust and discouraging people from seeking medical care. This leads to delayed treatments and poorer health outcomes.

The Electronic Privacy Information Center (EPIC) has released a report detailing what it calls a “health privacy crisis” affecting medical care across the United States. Published on January 21, 2026, the document points to multiple contributors exacerbating the issue.

Key elements include the presence of immigration agents in hospitals, which creates fear among patients. Additionally, private companies operate data brokers that buy and sell information revealing individuals' medical visits, often through ad-tech surveillance. These practices, combined with weak limits on law enforcement, are pushing people away from necessary care.

As a result, patients are retreating from treatment options, leading to delays in medical attention and worsening health results. The report emphasizes how this erosion of trust undermines the healthcare system, particularly for vulnerable communities.

EPIC's analysis underscores the need for stronger privacy protections in health data handling. While the report does not propose specific policy changes, it serves as a stark warning about the intersection of surveillance technologies and government actions in everyday health decisions.

This crisis highlights broader concerns over data privacy in an era of increasing digital tracking and enforcement activities.

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Illustration of a doctor disappointed by low 3.6% usage stats for electronic patient records in a clinic waiting room.
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Usage of electronic patient record remains low

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Despite new obligations for doctor's offices and clinics, only 3.6 percent of statutory insured use the electronic patient record actively. A survey by the RedaktionsNetzwerks Deutschland among major health insurers shows a slight increase since July 2025. Hopes for stronger usage through automatic filling of the records have not been fulfilled.

US Immigration and Customs Enforcement has issued a request for companies to share information on commercial big data and advertising technology tools. These products could assist in investigative activities, as outlined in a recent federal filing. The move highlights growing government interest in private-sector surveillance capabilities.

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The Office of the Data Protection Commissioner (ODPC) has warned private security firms in Kenya against unlawfully harvesting excessive personal data from visitors. In a draft guidance note, the ODPC states that only names, identification numbers, and entry times should be collected for building access. This alert comes amid rising cyber threats and major data breaches in the country.

Meta has begun blocking links to ICE List, a crowdsourced website that documents immigration enforcement activities and lists names of thousands of Department of Homeland Security employees. The move follows weeks of the site's links circulating on platforms like Facebook, Instagram, and Threads. Meta cites its privacy policy against sharing personally identifiable information as the reason.

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In an era where privacy faces constant threats, ordinary people are flipping the script by monitoring law enforcement as rigorously as they are watched. This shift challenges traditional notions of surveillance dominated by authorities. A recent article highlights this evolving dynamic.

India has released a national strategy for advanced computational systems in healthcare, focusing on integration into the health system architecture rather than mere add-ons. The approach prioritizes infrastructure like interoperable records and ongoing oversight to ensure equity. This contrasts with global trends where regulation often lags behind innovation.

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홍콩 개인정보 보호 당국은 올해 의원들과 의무 데이터 유출 보고 및 관련 처벌 도입에 대해 상담할 계획이며, 이는 2024년 지역 비즈니스 환경 우려로 입법 개혁이 보류된 후의 일이다. 개인정보 보호 담당 위원 아다 청 라이링은 토요일 시의 개인정보 보호 조례 개정안 세부 사항을 공개하며, 이러한 조치를 단계적으로 시행할 수 있다고 제안했다.

 

 

 

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