EPIC report warns of health privacy crisis in US

A new report from the Electronic Privacy Information Center (EPIC) highlights a growing health privacy crisis in the United States, driven by surveillance and immigration enforcement. Factors such as data brokers, ad-tech tracking, and actions by Immigration and Customs Enforcement (ICE) are eroding patient trust and discouraging people from seeking medical care. This leads to delayed treatments and poorer health outcomes.

The Electronic Privacy Information Center (EPIC) has released a report detailing what it calls a “health privacy crisis” affecting medical care across the United States. Published on January 21, 2026, the document points to multiple contributors exacerbating the issue.

Key elements include the presence of immigration agents in hospitals, which creates fear among patients. Additionally, private companies operate data brokers that buy and sell information revealing individuals' medical visits, often through ad-tech surveillance. These practices, combined with weak limits on law enforcement, are pushing people away from necessary care.

As a result, patients are retreating from treatment options, leading to delays in medical attention and worsening health results. The report emphasizes how this erosion of trust undermines the healthcare system, particularly for vulnerable communities.

EPIC's analysis underscores the need for stronger privacy protections in health data handling. While the report does not propose specific policy changes, it serves as a stark warning about the intersection of surveillance technologies and government actions in everyday health decisions.

This crisis highlights broader concerns over data privacy in an era of increasing digital tracking and enforcement activities.

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Illustration of a doctor disappointed by low 3.6% usage stats for electronic patient records in a clinic waiting room.
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Usage of electronic patient record remains low

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Despite new obligations for doctor's offices and clinics, only 3.6 percent of statutory insured use the electronic patient record actively. A survey by the RedaktionsNetzwerks Deutschland among major health insurers shows a slight increase since July 2025. Hopes for stronger usage through automatic filling of the records have not been fulfilled.

US Immigration and Customs Enforcement has issued a request for companies to share information on commercial big data and advertising technology tools. These products could assist in investigative activities, as outlined in a recent federal filing. The move highlights growing government interest in private-sector surveillance capabilities.

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The Office of the Data Protection Commissioner (ODPC) has warned private security firms in Kenya against unlawfully harvesting excessive personal data from visitors. In a draft guidance note, the ODPC states that only names, identification numbers, and entry times should be collected for building access. This alert comes amid rising cyber threats and major data breaches in the country.

The deaths of Renée Macklin Good and Alex Pretti during federal immigration enforcement actions in Minnesota have sharpened a partisan divide over how states should respond to Immigration and Customs Enforcement. Democratic-led states are exploring new oversight and legal tools aimed at federal agents, while Republican-led states are moving to deepen cooperation with federal immigration enforcement.

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Hawaii, one of 20 states suing the Trump administration over the sharing of Medicaid beneficiary data with the Department of Homeland Security, told a federal court it has no records showing data leaks, enrollment declines, or other concrete harms stemming from the policy, according to filings cited by America First Legal.

The EU Council is advancing plans for broader data retention policies amid the Chat Control bill's final stage. VPN providers are highlighted as potential targets in these discussions. This development raises concerns about privacy in digital communications.

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U.S. Immigration and Customs Enforcement has ended a recent large-scale operation in Maine, a move announced by Sen. Susan Collins after she said she spoke with Homeland Security Secretary Kristi Noem. The weeklong surge, known as “Operation Catch of the Day,” led to more than 200 arrests and triggered protests and political fallout as Democrats and Republicans position themselves ahead of the 2026 Senate race.

 

 

 

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