EPIC report warns of health privacy crisis in US

A new report from the Electronic Privacy Information Center (EPIC) highlights a growing health privacy crisis in the United States, driven by surveillance and immigration enforcement. Factors such as data brokers, ad-tech tracking, and actions by Immigration and Customs Enforcement (ICE) are eroding patient trust and discouraging people from seeking medical care. This leads to delayed treatments and poorer health outcomes.

The Electronic Privacy Information Center (EPIC) has released a report detailing what it calls a “health privacy crisis” affecting medical care across the United States. Published on January 21, 2026, the document points to multiple contributors exacerbating the issue.

Key elements include the presence of immigration agents in hospitals, which creates fear among patients. Additionally, private companies operate data brokers that buy and sell information revealing individuals' medical visits, often through ad-tech surveillance. These practices, combined with weak limits on law enforcement, are pushing people away from necessary care.

As a result, patients are retreating from treatment options, leading to delays in medical attention and worsening health results. The report emphasizes how this erosion of trust undermines the healthcare system, particularly for vulnerable communities.

EPIC's analysis underscores the need for stronger privacy protections in health data handling. While the report does not propose specific policy changes, it serves as a stark warning about the intersection of surveillance technologies and government actions in everyday health decisions.

This crisis highlights broader concerns over data privacy in an era of increasing digital tracking and enforcement activities.

Makala yanayohusiana

Illustration of a doctor disappointed by low 3.6% usage stats for electronic patient records in a clinic waiting room.
Picha iliyoundwa na AI

Usage of electronic patient record remains low

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Despite new obligations for doctor's offices and clinics, only 3.6 percent of statutory insured use the electronic patient record actively. A survey by the RedaktionsNetzwerks Deutschland among major health insurers shows a slight increase since July 2025. Hopes for stronger usage through automatic filling of the records have not been fulfilled.

US Immigration and Customs Enforcement has issued a request for companies to share information on commercial big data and advertising technology tools. These products could assist in investigative activities, as outlined in a recent federal filing. The move highlights growing government interest in private-sector surveillance capabilities.

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Ofisi ya Msimamizi wa Ulinzi wa Data (ODPC) imetoa onyo kwa kampuni za usalama binafsi nchini Kenya kwa kukusanya data ya kibinafsi nyingi bila kisheria kutoka kwa wageni. Katika taarifa ya mwongozo iliyotolewa, ODPC inasema kuwa ni lazima kukusanya tu majina, nambari za kitambulisho na wakati wa kuingia kwa idhini ya kuingia. Hii inatokea wakati wa kuongezeka kwa vitisho vya mtandao na uvunjaji wa data nchini.

Meta has begun blocking links to ICE List, a crowdsourced website that documents immigration enforcement activities and lists names of thousands of Department of Homeland Security employees. The move follows weeks of the site's links circulating on platforms like Facebook, Instagram, and Threads. Meta cites its privacy policy against sharing personally identifiable information as the reason.

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In an era where privacy faces constant threats, ordinary people are flipping the script by monitoring law enforcement as rigorously as they are watched. This shift challenges traditional notions of surveillance dominated by authorities. A recent article highlights this evolving dynamic.

India has released a national strategy for advanced computational systems in healthcare, focusing on integration into the health system architecture rather than mere add-ons. The approach prioritizes infrastructure like interoperable records and ongoing oversight to ensure equity. This contrasts with global trends where regulation often lags behind innovation.

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Hong Kong's privacy watchdog plans to consult lawmakers this year on introducing mandatory data breach reporting and related penalties, after the legislative reform was put on hold in 2024 due to concerns over the local business environment. Privacy Commissioner for Personal Data Ada Chung Lai-ling revealed details of the proposed amendments to the city's privacy ordinance on Saturday, suggesting the measures could be implemented in phases.

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