香港脊髓性肌萎缩症患者敦促政府为成人扩展补贴药物选项，包括注射疗法，以提升生活质量。香港神经肌肉疾病协会会长Lui Man-lam周日在记者会上表示，今年初已推出25岁以上患者的口服药补贴，但成人仍缺乏注射疗法的公共资助。
脊髓性肌萎缩症患者表示，一些人因成年后缺乏负担得起的护理而病情恶化。Lui Man-lam在周日记者会上指出，香港政府虽于今年第一季度通过社区关怀基金为25岁以上患者提供口服药补贴，但注射疗法仍未覆盖成人。
“我们主张两种治疗选项享有同等补贴——并非出于偏好，而是因应个体医疗需求，”Lui表示。
脊髓性肌萎缩症是一种遗传性神经肌肉疾病，脊髓和下脑干运动神经元逐步退化，导致肌肉无力，影响运动、吞咽和呼吸。香港于2018年开始补贴18岁以下患者的注射治疗，次年通过社区关怀基金扩展至两种其他疾病类型。口服药物于2021年注册并供应给儿童患者，2025年底开放25岁以上患者注册，今年第一季度起提供补贴。
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